by Steve Stark | Oct 11, 2011 | Uncategorized
The last two weeks have gone well for Kaden. He is now on Keppra which is a fairly common anti-seizure medication. Knock on wood… no seizures since the day we took him into the hospital two weeks ago. He is still adjusting to the medication because it makes him...
by Steve Stark | Sep 29, 2011 | Uncategorized
It was a typical Monday morning in the Stark household. Miki, Maddie and Jacob were up at about 5:30am. I decided to stay in bed instead of going for my morning walk, due to the rain (lazy ass!). I got up about 6:30am and Miki was preparing the kids’ breakfasts...
by Steve Stark | Jul 11, 2011 | Uncategorized
Well, it’s been a while. Nothing much has changed. We’ve kept plugging along with therapy and dosage increases for Kaden’s Baclofen pump. HIs tightness is a little better. While the loosening of his muscles has not necessarily helped with function, I...
by Steve Stark | Apr 6, 2011 | Uncategorized
Just when we start to feel good about where we are headed with Kaden’s treatment, we have to go see genetics. Today we had one of those appointments that we could do without. We met with Kaden’s genetics doctor today and the entire appointment was doom and...
by Steve Stark | Mar 5, 2011 | Uncategorized
Yesterday we took Kaden to see his neurologist. This was our first appointment with his new neurologist, Dr. Joseph. Kaden has seen her once before as she is the movement disorder specialist at Children’s. We really liked her the one time we got to meet with her...
by Steve Stark | Feb 23, 2011 | Uncategorized
Happy Birthday Buddy! Kaden turned six yesterday. We had a party with Miki’s family on Sunday and Keden really enjoyed all the attention. He always loves seeing his cousins and the chaos of all of them together with he and his siblings.We’ve had a new...